I have Multiple Sclerosis – also a demyelinating disorder – and I didn’t know that ALS is such a small group. They don’t have the peeps to muster for advocacy, lobbying, fundraising, or to encourage Big Pharma to invest in research to find treatment or even a cure.
What is five minutes out of your day to either do the Ice Bucket Challenge and donate, or ‘fess up to skipping the IBC and just donating? Either way, donate. Really.